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Design, Technology , and Engineering benefitting individuals with disabilities and older adults in the local community
January 24, 2021    
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Perspectives is the newsletter of the Stanford course,
Perspectives in Assistive Technology.

Perspectives of Stanford Students with a Disability

This issue announces the next class session
and encourages your participation in the course's Assistive Technology Faire.

Perspectives in Assistive Technology is a Winter Quarter Stanford course - entering its fifteenth year - that explores the design, development, and use of assistive technology that benefits people with disabilities and older adults. It consists of semi-weekly online discussions; lectures by notable professionals, clinicians, and assistive technology users; virtual tours of local medical, clinical, and engineering facilities; student project presentations and demonstrations; and a Virtual Assistive Technology Faire.

Course News

Two clip-art students

Course Statistics - Forty-five students have enrolled in the course, four students are auditing, ten vendors plan to participate in the Virtual Assistive Technology Faire, and nineteen students have chosen to work on projects suggested by six community members.

Next class session - Tuesday, January 26th at 4:30pm PST via Zoom

Perspectives of Stanford Students with a Disability
Sylvia Colt-Lacayo,Gene Sung-Ho Kim,
Tilly Kennedy Griffiths, Austin Gregory Brotman, and Abby Tamara

photo of Sylvia  photo of Gene  photo of Tilly  photo of Austin  photo of Abby

Abstract: In this panel discussion, four Stanford students (and Abby) will discuss their disabilities, the challenges they have faced, their academic goals, and the assistive technology they employ to be successful students (and community member).

Sylvia Colt-Lacayo's Biosketch: Sylvia Colt-Lacayo is a Sophomore at Stanford Univerity. While she is currently undeclared, she is interested in studying political science or international relations. Sylvia has been making films for the past five years, most of which discuss various social justice topics and her own disability. She wants to involve art in her future studies. Sylvia is passionate about advocacy and did lots of work this summer bringing awareness to the issue revolving around medical care that many physically disabled people face. This Los Angeles Times article - She got a full scholarship to Stanford. But can she afford the care she needs to go? - was published about her journey.

Gene Sung-Ho Kim's Biosketch: Gene Kim is a Sophomore exploring Symbolic Systems, Creative Writing, and Mechanical Engineering as potential areas of study. Due to a genetic retinal detachment condition, he gradually lost his sight while growing up, and became completely blind during his sophomore year of high school. Although challenging at times, alternative approaches to engaging with the world has enabled him to serve as a summer camp counselor, learn how to speed-solve Rubik's cubes, compete in the National Japan Bowl competition, and pursue his other academic and personal interests. Currently, he serves as secretary for the California Association of Blind Students (affiliated with the National Federation of the Blind of California), which is an activism and support community. For the future, he is interested in helping pioneer new assistive technologies to increase the scope and quality of accessible living for the impaired.

Tilly Kennedy Griffiths' Biosketch: Tilly Griffiths is an international student from the United Kingdom and is a junior studying Political Science and Communication. Shortly following her first birthday, Tilly was diagnosed with a neuromuscular condition called Spinal Muscular Atrophy (Type II), meaning she is a full-time power wheelchair user and relies on physical support with all aspects of daily life. However, since the age of 12 she aspired to cross the Atlantic and attend university in California, and her participation in the Sutton Trust US Programme for low-income, high-achieving students brought her to Stanford. She is a passionate advocate for people with disabilities, so far raising in excess of $7 million to ensure that young people can access the best wheelchairs to help them achieve their goals, and on campus she serves as the ASSU Co-Director of Disability Advocacy.

Austin Gregory Brotman's Biosketch: Austin Brotman is a Junior studying Symbolic Systems. After a diving accident during the summer before his sophomore year of high school fractured his C6 vertebra and left him paralyzed from the chest down, he found direction in his education and learned to use assistive technology to make up for the limitations imposed by his disability. Hoping to ease the financial burden of these technologies for others hoping to pursue further education, Austin founded the Spinal Cord Injury Scholars’ Fund in conjunction with Craig Hospital in Denver, Colorado, to provide education related assistive technology to students following a spinal cord injury. Looking forward, he is interested in exploring the ways the discipline of computer science can improve the lives of those with limited mobility.

Abby Tamara's Biosketch: Abby Tamara is an artist, a retired art teacher (grades K-College), a clinical social worker, and a computer graphic designer. She is an individual with multiple disabilities: a mobility challenge, a bipolar disorder, and a visual impairment. She is passionate about making a difference and advocating for individual rights. She has been a chair of the Consumer Advisory Council and formerly represented consumers on the Board of Directors of NAMI (National Alliance on Mental Illness) in Santa Clara County and has volunteered in their Connection Recovery Support Group and the Peer PAL Program. She has also volunteered for the Vista Center for the Blind and Visually Impaired, has been on the Board of Directors of the Silicon Valley Independent Living Center (SVILC), has successfully been involved in litigation to preserve the rights of service dog recipients when they are hospitalized, and has presented Poster Sessions and spoken at conferences including NAMI's National Convention, California ADA (Americans with Disabilities Act) 2015 Conference celebrating 25 years and the California Council of the Blind's Annual Convention. Abby has mentored elementary school students with art lessons, and partnered with high school students in programs for Project Invent and Design the Future. She is currently updating a therapeutic board game she made for inpatient psychiatric units. Abby has a successor service dog, Nathan, from Canine Partners for Life (CPL) in Cochranville, PA and has served on their Advisory Council.

Zoom Attendance

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This class session will not be open to community attendance - This decision has been made subsequent to the loss of vocal quality during the first class session - mostly likely due to the large number of attendees. For this reason, I may have to restrict Zoom attendance to enrolled students. However, I will provide the link to this recorded video session to anyone who requests it.

Upcoming class sessions:

Assistive Technology Faire

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You are invited to participate in the Virtual Assistive Technology Faire - This ninth annual course event is scheduled for Thursday, February 25th and will provide an opportunity for students and community members to get an up-close look at a variety of assistive technology devices and learn about available services. Users of assistive technology products as well as small companies and agencies serving individuals with disabilities and older adults are encouraged to join in on this virtual event. Please browse to the Call for Assistive Technology Faire Participants webpage for more information and contact me to register. Each vendor will have 5 to 10 minutes of unopposed Zoom time to display, demonstrate, and discuss their assistive technology products or services. Everyone is welcome to attend the Faire. Ten vendors have signed up to participate so far.

Here is the line up and slides from last year's Faire.

Seeking Participants for a Study on Disability and the Environment

clip art of a faire

"If you are a person with a mobility disability who would be willing to talk about your experiences with environmental change, I would like to speak with you. People with disabilities have historically been left out of planning for environmental change and climate disaster, and your story matters. I am especially interested in learning about how the environment affects your life and how your identity affects your experience of the environment. For this study, I am looking to interview people with mobility disabilities."

"If you are interested in being involved in the study, please contact me, Molly King. Interviews are confidential and your participation is voluntary. Participants receive a $15 gift card or charity donation of equal value for an hour of their time."

"If you cannot participate but know of someone who might be interested, I would appreciate you forwarding this message. Thank you."

Molly M. King, PhD
Assistant Professor of Sociology
Santa Clara University

Other

Email questions, comments, or suggestions - Please email me if you have general questions, comments, corncerns, or suggestions regarding the course. Thank you again for your interest.

Dave

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